Behavioural Telehealth: Research and Development at the University of British Columbia
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Incubator Research Grant Progress Report: Year 1

Faculty of Education, University of British Columbia
May 1, 2000

Principal Investigator: Bonita C. Long, Ph.D. (ECPS)
Co-Investigators: Marla Arvay (ECPS)
Linda Stanley Wilson (CUST)
  1. Summary of activities to date
  2. Highlights of the project
  3. Ways in which the research to date has enhanced opportunities for securing future funding
  4. Dissemination and publication of the research results
  5. Extent and nature of student participation and training
  6. Conclusions

Principal Investigator: Bonita C. Long, Ph.D.

Department: Educational and Counselling Psychology and Special Education
Title of Project: "Telehealth: Wellness and Health Education"

The project is ongoing. Estimated completion date is April 2002.

1. Summary of activities to date

This project was started by Dr. Bonita Long in 1999 and stems from the fact that Dr. Long is supervising two doctoral students (Kate Collie and Marie-Hélène Pelletier) who are doing research in the area of telehealth/distance health education. Telehealth is an intrinsically interdisciplinary field, and is a new and complex area of research. Dr. Long has extensive experience with interdisciplinary research, specifically research that combines mental health, physical health, and education. As a supervisor of two telehealth projects, she saw the need for interdisciplinary collaboration. Furthermore, she envisioned the benefits of such collaboration to other telehealth researchers at UBC and elsewhere.

In this first year of the 3-year grant period, we had four primary tasks:

a) to establish an education-focused network of telehealth researchers at UBC and elsewhere
b) to begin compiling a directory of telehealth information
c) to begin to organize pilot projects relating to our telehealth research
d) to seek further funding for the project

The research team met regularly during the year. In addition there were several meetings in small groups, often involving Kate Collie, Marie-Hélène Pelletier, and individual members of the research team.

The research team consists of:

Principal and Co-Investigators:
  Dr. Bonita Long

ECPS

  Dr. Marla Arvay

ECPS

  Dr. Linda Stanley Wilson

CUST

     
UBC Collaborators:
  Dr. Kellogg Booth

MAGIC - Computer Science

  Dr. Brian Fisher MAGIC - Computer Science
  Dr. Joanna Bates

Family Practice

  Dr. John Gilbert

Health Sciences

  Marie-Hélène Pelletier

Ph.D. student, ECPS/counselling Psychology Program

  Kate Collie

Interdisciplinary Ph.D. student, Institute of Health Promotion Research

  Davor Cubranic

Ph.D. student, Computer Science

  Danielle Conrad

MA student, ECPS/ counselling Psychology Program

     
Community Collaborators:
  Dan Mitchell, M.A. Counsellor, co-founder of "Therapy Online"
  Dr. Robert Wilson Wilson Banwell and Associates, Inc.

2. Highlights of research to date

(a) Establishment of a Network of Telehealth Researchers:

The research team meetings were not only an opportunity to develop our research ideas, but also to broaden our network of collaborators. This was done both at UBC and beyond UBC.

At UBC, the team met regularly for two hours at a time to work on a variety of tasks, including discussing with each other our involvement and expertise relating to telehealth, sharing scientific literature about telehealth, planning the format and content of the telehealth directory, participating in structured small group activities designed to clarify research directions, and developing strategies for obtaining further funding.

Over the course of the year, other people were invited to attend our meetings. These people included:

Ann Bishop (Research Associate, Health Promotion Research)
Dr. Hal Siden (Director of Telehealth, BC Women's and Children's Hospital)
Dr. John Willinsky (LANE)
Dr. Jim Frankish (Psychologist, Director of the Institute of Health Promotion Research)
Dr. Joan Bottorff (School of Nursing)
Diane Janes (Distance Education and Technology, Continuing Studies).

Davor Cubranic developed a listserv for the team, which allowed team members to share information and ideas between meetings.

Marie-Hélène Pelletier and Kate Collie established connections with psychologists, other mental health clinicians/educators, and community and industry partners from different parts of Canada and the United States. Some of these contacts were facilitated by the attendence of Marie-Hélène Pelletier at the Canadian Society for Telehealth (CST) Conference in October 1999 in Calgary, which has allowed her to network with researchers involved in telehealth in Canada. This allowed us to discover that very limited work is presently being done in behavior telehealth and distance health education. It also showed very clearly that a strong interest in telehealth and distance health education exists across a range of disciplines. These people include:

Dr. Michael Catchpole (Psychologist, Port Alberni, BC)
Dr. Leigh Jerome (Psychology Department, AKAMAI and Tripler Army Medical Center, HI)
Dr. Harry Karlinsky (Psychiatrist, Project Director, U.B.C. Mental Health Evaluation and Community Consultation Unit (MHECCU))
Dr. Christian Keresztes (Psychologist, Queen’s University, ON)
Dr. Maria Klawe (Dean of Science, UBC)
Dr. Peter McLean (Psychologist, Department of Psychiatry, UBC)
Dr. Marlene Maheu (Psychologist, San Diego, CA)
Cathy Malchiodi (Registered Art Therapist, Salt Lake City, ID)
Dr. Sarah Miyahira (Psychology Department, AKAMAI and Tripler Army Medical Center, HI)
Craig Ross (U.B.C. Telestudios Coordinator)
Dr. Beth H. Stamm ( Institute of Rural Health Studies, Idaho State University, ID)

Marie-Hélène Pelletier is now a member of the CST Membership Committee.

Kate Collie and Marie-Hélène are members of the following telehealth listservs: "Telehealth" and "International Society of Mental Health Online".

(b) Compiling a Directory of Telehealth Information:

Our reviews of printed and electronic literature about telehealth (health and health education) have shown that there is a very limited amount of quality research in this area, and that the need for research is great. A summary of our reviews will be the basis of the telehealth directory we are developing. The directory will be in the form of a website (created by Kellogg Booth, Brian Fisher, and Davor Cubranic). The organization and initial categories for the directory have been established.

(c) Pilot Projects:

As our knowledge of the field is growing, plans for specific pilot projects are evolving. Funds have not been used to set up pilot projects yet. Accordingly, we have decided to postpone the visits to North American telehealth sites in order to target more closely what we need to learn as we get closer to conducting the pilot projects.

(d) Seeking Further Funding:

In September 2000, the team will go forward with the first step of preparing an application for a Peter Wall Institute Major Thematic Grant. This will be a workshop held at the Peter Wall Institute at which the team will consolidate the main research questions and determine which outside researchers will be involved. Other funding sources that are being considered include the Health Infostructure Support Program, the Open Society Institute Individual Project Fellowships, and the Vancouver Foundation.

In April 2000, Marie-Hélène Pelletier obtained a travel grant to present a telehealth symposium at the annual meeting of the Canadian Psychological Association in Ottawa (June 2000).

3. Ways in which the research to date has enhanced opportunities for securing future funding

The fact that we have put together a multi-disciplinary team of university and community researchers who are all interested in this new area of research (telehealth and tele-health education) has put the team in a good position to apply for funding such as a Peter Wall Institute Major Thematic Grant. The emphasis we have put on networking has helped us learn about possible sources of funding.

4. Plans for dissemination and publication of the research results

The following list includes papers and conference presentations to date:

PUBLICATIONS:

Collie, K., & Cubranic, D. (in press) Computer-supported distance art therapy: A focus on traumatic illness. In H. Resnick (Ed.) Innovations in Social Work Practice and Education. Seattle, WA: University of Washington Press.

Collie, K., & Cubranic, D. (1999). An art therapy solution to a telehealth problem. Art Therapy: The Journal of the American Art Therapy Association, 16(4), pp. 186-193.

Collie, K., Cubranic, D., & Booth, K. (1999). Computer-supported distance art therapy: Beyond computerization. In Proceedings of WebNet 2000, AACE: Association for the Advancement of Computers in Education.

Collie, K., Mitchell, D., & Murphy, L. (2000). Skills for cybercounseling: Maximum impact at minimum bandwidth. In J. Bloom & G. Walz (Eds.) Cybercounseling and Cyberlearning: Strategies and resources for the millennium (pp. 219-236). Alexandria, VA: American Counseling Association and Greensboro, NC: CAPS, Inc.

CONFERENCE PRESENTATIONS:

Collie, K., Cubranic, D., & Booth, K. Computer-supported distance art therapy: Beyond computerization. WebNet 99: Association for the Advancement of Computers in Education, Honolulu, HI, October 25-30, 1999.

Collie, K., & Cubranic, D. The development and evaluation of a computer system for distance art therapy. In P.L. Schneider and M.M. Maheu (Chairs), A Cross Perspective of the Integration of Technology and Mental Health Service. Symposium Presented at the annual meeting of the American Psychological Association (APA), Boston, MA.

Pelletier, M.-H., Maheu, M., & Burton, D. (Accepted, 2000). Assessment in telehealth : Innovative graduate students research. Symposium accepted at the annual meeting of the American Psychological Association (APA), Washington, DC.

Pelletier, M.-H., & Keresztes, C. (Accepted, 2000). Telehealth: Clinical and organizational issues in vidoconferencing for mental health care. Symposium accepted at the annual meeting of the Canadian Psychological Association (CPA), Ottawa, On.

Wilson, R. F. & Pelletier, M.-H. (2000, April). Telehealth: An overall perspective. Symposium presented at the annual meeting of the Employee Assistance Services of North America (EASNA), Vancouver, BC.

Pelletier, M.-H. (1999, August). Integrating Telehealth and Media: Radio Psychology. In P.L. Schneider and M.M. Maheu (Chairs), A Cross Perspective of the Integration of Technology and Mental Health Service. Symposium Presented at the annual meeting of the American Psychological Association (APA), Boston, MA.

OTHER WORK:

Pelletier, M.-H. (1999). Integrating Telehealth and Media: Radio and Internet Psychology. TelehealthNews. Retrieved October 12, 1999 from the World Wide Web: http://www.telehealth.net

PLANNED PUBLICATIONS AND CONFERENCE PRESENTATIONS

Kate Collie, with Kellogg Booth and Joanna Bates. "Human Factors in Telehealth: What Can We Learn from Other Fields?" Journal article in progress.

Marie-Hélène Pelletier, with Joanna Bates, Leigh Jerome, and Beth Stamm. "Assessment in telehealth: Issues in the effectiveness of psychotherapy delivered through videoconferencing". Journal article in progress. (See attached Directed Study final paper.)

5. Extent and nature of student participation and training

Kate and Marie-Hélène, two doctoral students, are responsible for organizing the team meetings, recording the minutes, and are involved in managing all aspects of the grant. Davor Cubranic, Ph.D. student in computer science, is on the team as a computer programming consultant. He is maintaining the listserve and will help create the website directory. Danielle Conrad, a first year MA student in the Counselling Psychology program has joined the team as a volunteer.

Kate Collie’s dissertation is on the topic of creative expression in distance psychosocial care for people facing life-threatening illnesses. This dissertation research is a continuation of Kate’s Master’s research, which was conducted collaboratively with Davor Cubranic and was supervised by Dr. Long. Dr. Long is co-supervising Kate Collie’s doctoral work with Dr. Booth.

Marie-Hélène Pelletier’s dissertation is in the area of effectiveness of psychological services (education, therapy) provided through videoconferencing. After having done her Master’s focused on the treatment of people suffering from panic disorder with agoraphobia, she has paired her interest in anxiety disorders with telehealth. Dr. Long is supervising Marie-Hélène’ doctoral research.

Both dissertations are directly supported by the Incubator Grant.

(a) Directed Studies

Kate Collie undertook a telehealth directed study with Dr. Kellogg Booth and Dr. Joanna Bates. The purpose of the directed study was to bring information from the fields of computer-mediated communication, human-computer interaction, computer-supported collaborative work, distance education (and other related fields) to bear on questions raised in literature about behavioural telehealth. The directed study involved a review of literature about behavioural telehealth (mental health care from a distance) and review of literature from other fields addressing key questions derived from the telehealth literature review. A paper reporting on the project is being prepared for publication. This directed study enabled Kate to conduct part of the literature review for her PhD research project, to focus her research question, and to begin creating a directory of telehealth information.

In June 1999, Marie-Hélène Pelletier started a directed study that was supervised by Dr. Joanna Bates (UBC instructor), Dr. Beth Stamm ( Institute of Rural Health Studies, Idaho State University, ID), and Dr. Leigh Jerome (Psychology Department, AKAMAI and Tripler Army Medical Center, HI). Drs. Stamm and Jerome were supervising Marie-Hélène through email, which worked very well. The goal of the directed study was to examine the empirical literature and projects in the field of telehealth associated with the use of videoconferencing in psychotherapy, with a particular focus on the kind of data that are collected. Course readings covered such topics as the conceptual issues related to psychotherapy done through videoconferencing, conceptual and methodological issues in data collection, individual differences, and influences of gender, culture, and context. This directed study enabled Marie-Hélène to conduct part of the literature review for her PhD research project, to focus her research question, and to begin creating a directory of telehealth information. This directed study was completed in December 1999.

(b) Travel/Conferences

Marie-Hélène Pelletier and Kate Collie both presented at the American Psychological Assocation in August 1999. Kate Collie and Davor Cubranic both presented at the WebNet 99 conference (Association for the Advancement of Computers in Education). Marie-Hélène Pelletier will present at the Canadian Psychological Association in June 2000.

6. Conclusions

Research team members have communicated to us that their involvement in this project has been fruitful for them. New collaborations have been established, and a network of telehealth researchers now exists. Specific comments from team members include:

"My involvement in the "Telehealth: Wellness and Health Education" project has allowed me to learn about the field of telehealth as it pertains generally to health education and mental health education, and specifically to distance psychosocial care (including health education) for people with life-threatening illnesses. As a result of the networking and idea-sharing that is at the heart of this project, I have a clearer sense of how to think comprehensively about the logistical, political, clinical, technical, and educational dimensions of telehealth. My research focus has shifted from a purely clinical (therapeutic) perspective to a perspective based on using available technologies to blend health care and health education, as needed."

"I have found a rich and unique combination of expertise in the "Telehealth: Wellness and Health Education" team, which provided a very fertile terrain for developing ideas about how telehealth can be applied and researched. The team members were instrumental in generating contacts with other researchers, which also contributed to the team’s ideas. The financial support provided by the Incubator Grant opened doors for me in allowing me to network with other researchers, either by traveling to conferences or getting in touch with people through telecommunication means. In the next year, the financial resources will also be crucial in allowing me to perform the necessary pilot project. The overall support that I have received because of the formation of this group of researchers is invaluable."

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